Associate Director Patient Advocacy Milano

Associate Director Patient Advocacy
Milano
Lombardia, Milano

Some opportunities happen only once in a lifetime - like a job where you have the chance to change lives.

At Alexion, people living with rare and devastating diseases are our Guiding Star.

We are driven to continuously innovate and create meaningful value in all we do to help patients and families fully live their best lives.

We value the uniqueness and diversity of our employees and recognize that nurturing the diverse perspectives and strengths of our people translates into innovative breakthroughs for patients.

**Associate Director, Patient Advocacy Italy

Reports to: Director, Patient Advocacy Italy

Location: Milan

**Principal Responsibilities

The Associate Director will work under the strategic guidance of the Advocacy Director of Alexion Italy and as part of the Global Patient Experience function with the aim to contribute to the development and implementation of the Patient Advocacy Strategy for neurofribromatosis in Italy as well as support the implementation of the Patient Advocacy strategy and related activities for Alexion Italy across the different therapeutic areas of interest to Alexion.

Role specific tasksLead and execute the annual patient advocacy plan and patient engagement plan for Alexion Italy in the area of Neurofibromatosis Type 1 (NF1) under the supervision of the Patient Advocacy Director

- Contribute to the development and implementation of the patient advocacy plan across the other therapeutic areas of interest to Alexion as well as ensuring execution of identified activitiesIdentify, build, and maintain strategic and sustainable relationships with new patient

Communities in the area of NF1 and other therapeutic areas as assigned

- Build, maintain and enhance strategic and sustainable relationships with patient

advocacy organizations (PAGs) in the areas of interest to Alexion

- Contribute to the Patient Advocacy function of Alexion Italy by providing dedicated support to local launch and brand teams as well as other key local workstreams by identifying critical areas for patient engagement / patient input; keep track of and communicate key deliverables, milestones and timelines / coordinate & implement related activities

- Contribute to the Patient Advocacy function in Italy by showcasing the value of patient advocacy and by delivering best-in-class patient engagement across the therapeutic lifecycle under the strategic guidance of the Advocacy Director

- Contribute to designing patient-centric processes and establishing best practice of

patient engagement across the therapeutic lifecycle of Alexion Italy from across the different therapeutic areas of interest to Alexion and other patient advocacy and relevant allied stakeholder organizationsContribute the Alexion Italy perspective within the Global advocacy team under the strategic guidance of the Advocacy Director, and contribute to global/international work streams where the local perspective is requiredSupport the coordination and implementation of the engagement of PAGs in clinical development programs running and/or planned in Alexion Italy

- Support the coordination and implementation of the engagement of PAGs in launch planning and data generation initiatives

(HEOR/ MR) as well as in relation to local HTA processes or other post-marketing

initiatives, in close partnership with Medical Affairs and Market Access teams andBased on local needs assessment, support the development and carry out Patient Advisory Boards, focus groups and roundtables with patient representatives, patients, and caregivers, in close collaboration with the cross-functional team

- Based on local needs assessment, carry out strategic patient advocacy programs and partnerships related to disease awareness and education, diagnosis, access to appropriate care, and policy advocacy, in close collaboration with the

the cross-functional teamContribute to educating internal stakeholders on the role of PAGs and our standards of working with PAGs; champion the patient voice and experience at the local level and ensure that patient perspectives are reflected in our thinking and approaches

- Manage and track PAG sponsorships & other key processes in Alexion Italy; coordinate annual disclosure of PAG funding in Alexion Italy as appropriate

- Represent Alexion at local PAG events, seminars and conferencescontributing to the company's evolving philosophy and long-term vision for patient engagement as well as enhancing the patient-centric culture within the company

- Identify and create opportunities for other internal functions to engage with and listen to patients and caregivers to learn about their journey and needs

- Establish close cross-functional collaboration with all key internal business functions

- Ensure ethically sound and compliant collaboration with PAGs in Italy

- Manage and execute multiple projects while maintaining an understanding of local and global Priorities as well as attention to detail and excellent quality and execution skill